Free from the hospital at last! His leukoblasts weren’t zero but they were 2, and they told us they really saw his mood going down hill, and realized that it wasn’t the best place for him to be anymore. We are in an Airbnb 1.5km from the hospital, so we’re not home… but we are one big step closer. And for the first time in 18 days he isn’t going to be woken up every hour or two to be poked and proded by caring nurses— he gets to sleep. He gets to rest. And he gets a break from the noises and constant people popping in.
He is emotional today. Steroids do some wild things to his little body…. Anger, tears, and fear. But it’s all to be expected. He had the bandage/dressing changed on his picc today and it truly was torture for him 😞 He was so drained by it all that he just wanted to nap.
At suppertime, my Dad arrived to spring us from the hospital and take us to the air bnb. It was hard for him to see Lochlan so frail and sick. He said he was shocked. It’s amazing how fast Lochlan went downhill. (And honestly Lochlan is looking so much better now than he was before!)
Lochlan was not happy leaving the hospital and arriving at the new place because it’s still not home. But he did settle in, played on his new tablet (spoiled by his grandpa), and ate lots of food before crashing for the night.
Mitch had to go pick up Lochlan’s meds at the pharmacy today. And had to pic up the saline and heparin for the picc line care. So the counter is loaded with pill bottles and syringes and documents/schedules/instructions etc.
We get a few days reprieve before bloodwork and vitals check on Monday morning, and then more chemo on Tuesday. The fact that we can both get a full night’s rest is amazing! Heck, this is the first time in 28 days that I’ve laid down on a bed (I’ve been sleeping in a recliner). So we’re soaking up the goodness of it, and although we’re not home yet, we’re out of the hospital, and with family, and for us that’s huge.
Thank you for your continued prayer. Please continue to pray that his bloodwork continues to improve so that we can get home where we truly belong.
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