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Day 27

I feel like he’s really turned a corner mentally with accepting his situation. He knows in his heart he is going to be ok, and even though he still has big emotions he knows they’re amplified by the steroids. He had a good day today, and it gave him a little more hope.



He ate plenty of delicious food, spent time hanging out with his big brother in the basement, walked out to sit under the juneberry trees + watched Mitch + Luke pile wood, played cards outside with me, spent time drawing and colouring, and had a picnic supper out on the deck. Other than his weakness and resulting immobility, it was another “normal” day here at home.




I’m grateful for these moments of normalcy, since I know we have a long road ahead and over the next few weeks and months we will be uprooted and spending plenty of time traveling to and from and in hospitals. But for today, on a beautiful summer’s day, he got to feel a little bit like himself, in the place he loves with the people he loves.



It’s easy to get overwhelmed when we look too far ahead at all we have to face, but when we take it one step at a time it helps us find gratitude and a small sense of control.



Tomorrow is the last day of his steroid. Mitch will be at work while Lochlan and I get psyched up to head to Halifax for an appointment on Tuesday, and Luke continues to grow and thrive as a 12 year old boy should.

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