Day 59 of Lochlan’s healing journey with near haploid leukaemia began bright and early with 2.5 hours of antibiotics. But then he got to be unhooked for a few hours which was nice, but frustrating when you’re in isolation (due to Covid). He paced the room and had hope that we could go outside when the nurse told us they were calling around to the powers at be to see if we could. Sadly, when 12:00 rolled around there was still no answer and it was time to get another 2.5 hours of antibiotics. The nurse saw his little heart sink and saw how, for his mental health, important it is for him to get outside. Lochlan decided to sleep for the entire 2.5 hours because, “sleeping is better than life in the hospital”.
Thankfully, the nurses got together and made the executive decision to let us go outside after his mid-day antibiotics with the rule being that we mask up in the halls, hand sanitize before we left the room, and touch as few things as possible on the way to the garden. They realize that they need to protect others from us, and we need to protect Lochlan from others but being so asymptomatic and knowing we’d be cautious, they let us go.
What a drastic change in mood for Lochlan when we got out in the fresh air. He was talkative and content. We ordered food and he actually ate it (his appetite hasn’t been good since we came to the hospital on Sunday). We called big brother Luke and they talked and talked together. Overall, it was a complete 180 in Lochlan’s mood and mental health as we spent three full hours out there, and only came in because it was time for antibiotics again.
We spoke with his oncologist today and so far we’re still right on track for his cancer treatments, and she was amazed at how well Lochlan handled Covid. She now is waiting to hear back from the infectious disease specialist to hear how long of a course of antibiotics this needs to be for Lochlan. They know the organism that caused the infection so it should be quick to find out the duration of his antibiotics treatment. Once that info is out we will see if we can’t finish things back at the home hospital (or even at home with extra mural support). Time will tell.
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